WHAT WE DO
Together with our family and friends, the Incredible Teddy Foundation is committed to standing up to CDH by raising awareness of this life threatening birth defect, and making a substantial impact on the lives of families who are affected by this diagnosis.
What is CDH
Congenital Diaphragmatic Hernia (CDH) is a complex health condition that can threaten the life of a newborn infant.
CDH is characterized by the underdevelopment of the diaphragm in utero, allowing some abdominal organs to migrate into the chest cavity, where they can impede heart and lung development.
AFTER THE DIAGNOSIS
CDH in newborns can vary from mild to severe, but the national survival rate is approximately 50%.
Of the newborns that survive the first critical days of life, months and potentially years of treatment and rehabilitation can follow.
but it didn’t take long for the nightmare to begin. The next weeks of his life were a constant battle – surgery, life support, IV’s, dozens of medications, and fluids that puffed up his little body like a marshmallow. After five days on life support and another 16 days on a ventilator, Teddy was finally able to breathe on his own. Eight weeks after he was born, Teddy was discharged from the hospital. Teddy’s family was blessed to have a network of caring family and friends to assist with all that comes with lengthy hospitalization, and our foundation strives to recreate the support that is so desperately needed when another families receives the same CDH diagnosis.
If you are a parent, or know a parent, who has a child diagnosed with congenital diaphragmatic hernia, please contact us at
firstname.lastname@example.org for information on how to receive a financial grant from the Incredible Teddy Foundation.
Hospitals and Medical Expertise
If you know a child diagnosed with congenital diaphragmatic hernia, there are several specialty hospitals across the United States that can provide substantial expertise in the diagnosis and care of babies born with CDH.
Boston Children’s Hospital
Children’s Hospital of Philadelphia
Duke Children’s Hospital
Fetal Care Center of Cincinnati
New York Presbyterian (Morgan Stanley Children’s Hospital)
Shands Children’s Hospital
UCSF Fetal Treatment Centerl